I have had the opportunity to be home with Logan and more in the loop on his day to day changes. He has more seizures these days and the big ones last longer. He is irritable to stimuli more and more. Some days he sleeps all day and we are lucky if he opens his eyes and other days we can't hardly get him to close them. It is a mind game of hurry up and wait and we are sitting on pins and needles unsure when the next big change will happen.
In the meantime we have been making plans for the tough days that lie ahead. My mom came last week and we visited with our pastor and met with a funeral home. We have a lot of things to plan but know exactly what we need to have ready. I am starting to delegate out things and people have been great about offering support. We have such great family and friends.