Tuesday, June 24, 2014

Fun in the sun!

Lauren, Logan, nurse Cora and I had a great Monday this week. We went for a quick appointment to the nurse practitioner to have a rash/eye redness looked at and decided to then go for pizza, the splash pad, and ice cream. The weather was perfect and Logan enjoyed splashing in the water with Lauren. Lauren soaked Cora and Logan at one point and the laughter of us all felt great. It was such a blast to involve Logan. Lauren seemed to really enjoy the time with her brother. We ended the outing with strawberry ice cream for Logan and I and mint chocolate chip for Lauren. Logan may not be able to eat by mouth but we do sneak him tastes of his favorite ice cream flavor every once in a while! Happy Summer everyone!













Tuesday, June 17, 2014

Life is good

Hello! 

Well things have stabilized in our household. My last post was packed with emotion. We are through the crisis phase and are moving on.

Logan had been having severe bouts of agitation causing him to be inconsolable and to bite his tongue and mouth constantly. His doctors tweaked his medications a few times and we seem to be in a good spot. Logan has more good days than bad which is a definite step in the right direction. Comfort is key.

He sleeps more which is a side effect of the medications but I would take that any day over the agony he was in. He is going to a couple weeks of summer school and today was the first day. We are so lucky to have such awesome teachers and therapists. Regardless of barriers made by his disability, the school team works to include him in everything. 

Logan sees his neurologist this week for a check up. Otherwise I can't complain!