Logan had his appointment with Dr. Tanaguchi (physiatrist). He had a fellow with him (a doctor in training). Both of them did their assessment of Logan. They agree with everything that has been done for Logan thus far. He wants us to see a pulmonologist to address the problems with aspiration and breathing. He gave us names and numbers to specialists at Children's Hospital in Minneapolis since that is where Logan has been getting all his care.
They did an xray of his pelvis/hips. He wanted to see Logan's hips to make sure there were no problems. He explained that since Logan is not weight bearing as of yet that he wants to keep an eye on the development of the hips to prevent subluxation.
He also wanted to make sure we had the proper equipment for Logan. He said that he would be our contact when we were in need of orders for equipment. He also commented on how great it is that we are well connected with the various specialists, the Birth to 3 program, etc.
He did not have anything to add related to our search for a diagosis. He did agree that Dr. Renaud at Mayo Clinic is the specialist to be seeing for a diagosis. He also addressed that a diagnosis could be found but that it may take time and there is still a possiblity that we may not get one.
He wants to see Logan in six months for follow up to monitor his development. All in all, Dr. Tanaguchi and his staff were great. They addressed all of our questions. I am glad to hear doctors that are honest. We heard multiple times from the staff that it is hard to not know what to expect. I was glad to hear that they understood the frustration.
I am excited to get Logan in to see a pulmonologist. I am hoping they can help us develop a plan for his aspiration and help me know what to do when Logan gets respiratory infections. Being a nurse can sometimes be problematic when I am sitting at home in the middle of the night trying to decide wether to take Logan to the hospital. He compensates so well and when he is being hydrated 24/7 with the feeding tube I don't have some of the normal indicators that my child is sick. I have a hard time knowing when to be mom and have him seen vs being the nurse and trying to manage the situation myself! I know it is a little crazy! Sometimes I feel like I have two personalities when it comes to taking care of Logan!
On a fun note, Logan has a new favorite activity. He loves to sit in his exersaucer and bat at toys. Our physical therapist through the school brought over a new device that looks like a big diaper that we strap around Logan. When we put him in the exersaucer he is well supported and is able to play. Thanks Sara!! I will put up a picture or some video of him in it soon. Gotta run. Kids to play with!
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