This evening Logan had a tough time. He has had a good couple of days of comfort and was mostly seizure free. Today he seemed quite alert and as the afternoon and evening went on his alertness turned to agitation. The seizures worsened and he required many extra doses of the versed drip. Our nurse had to call hospice as he exceeded the number of doses of versed that they would have wanted him to receive. Thankfully the doctor was contacted and the increased dose was ordered. The hospice nurse came and changed the dose and now he is very sedated. His oxygen level is pretty low right now but he is peaceful so we are going to let the medication clear his system a little bit. He's what we called "snowed"!
Today we changed his versed drip to a lower volume of fluid but the same dose. He was still on enough milliliters of fluid that it could sustain a person longer. We would love for him to live longer for our sakes but it is not fair for him. The change in volume will allow his body to rest as he continues his journey on earth. We know this change means things will begin to progress. My gut says we will see many changes this weekend. We saw more than I expected tonight but I trust that he is getting exactly what he needs to feel pain free. Logan does everything in his own time and his own way. He carves a unique path that you can't predict. We will continue to surround him with love as the days carry on knowing the next path for him will be full of light, joy, and freedom.
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