Friday, February 15, 2013

Sinemet

I received a call from Logan's neurologist office yesterday. At Logan's last neurology appointment, Dr. B discussed trying a medication to help slow Logan's abnormal movements. Logan has what is called choreoathetosis. His arms, legs, face, and mouth are continuously moving while he is awake. At times the movements appear uncomfortable for him. We also wonder if the movements of his jaw are increasing the amount of saliva he makes. If we could decrease his saliva production, we hope to see less respiratory infections and more comfort. We also hope slowing the movements will enhance his development of new skills. 

Our neurologist consulted with a specialist at Mayo Clinic. We had seen that doctor about a year and a half ago. She recommended we start the medication Sinemet. Sinemet is used for Parkinson's patients. There are some side effects we have to watch closely for. The dose will start very low and can be increased if needed. I hate throwing another medication at Logan but at least this isn't permanent. If it doesn't work then we stop giving it. If it works, this momma will be one happy lady! 

I will keep the updates coming on the progress with the new medication. I am always fascinated by the world of medicine and am on the edge of my seat with what this change may bring. I have some video of Logan from today where you can see some examples of how he moves. 



This video has some commentary from our daughter Lauren that may make you laugh!

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